CORDOVA — More than 100 people splashed through mud, flipped tires and leapt over fire on Sunday afternoon, June 9, at the Tardigrade Obstacle Course to raise funds for the Batten Disease Support and Research Association.
The event, “Fighting for Conner,” was all in support of six-year-old Conner Beish of Denton who is fighting the rare and terminal disease.
With 164 race participants and 50 volunteers, the event raised about $7,600 for BDSRA in hopes of finding a cure for Batten Disease.
“It means the world. This is what keeps us going, having support of friends and family and even people we don’t know coming out to help,” said Hollie Beish, Conner’s mom. “It gives us strength.”
Race day was filled with obstacle course racing, kids activities — such as a bounce house, face painting and kindness rock painting — and a special visit from the 501st Legion Star Wars characters, Conner’s favorite.
Jannelle Bramble, friend of Hollie Beish, came up with the idea for the fundraiser at Tardigrade Obstacle Course.
“We’re here to raise money and support Conner and all of his friends,” Bramble said, thanking the hosts, volunteers and sponsors. Jeff Beish thanked everyone who came out to support Conner and the foundation, too.
Jessica Lister, Tardigrade Obstacle Course owner (along with husband, Matt Lister), says the course motto is “having fun, conquering fears, pushing limits.”
“As everyone knows, life can be difficult. There are thousands of different obstacles that you will face throughout your lifetime. Not only physical obstacles and challenges, but mental and emotional as well,” Lister said. “We love helping people overcome their fears, push their limits and face challenges head on.”
Lister said she immediately agreed to host the fundraiser and said “families coping with the diagnosis of Batten Disease require a ton of strength, commitment and courage to face this disease head on. They are faced with one of the most challenging obstacles of all, and they keep on pushing, they keep on fighting and they keep moving forward.”
“We were blown away with the support that Conner and his family have in this community. Our goal was to raise awareness for Batten Disease and to help support the BDSRA...our goal was accomplished. The day was amazing! All of the participants, volunteers, and families worked together to make the event a true success.”
The Batten Disease Support and Research Association supports families on their journey, assisting in funding research for therapies and hopefully a cure.
More information about the association and Batten Disease can be found here.